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Cystic Fibrosis Podcast

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Jerry Cahill's Cystic Fibrosis Podcast is presented by the Boomer Esiason Foundation. A non-profit organization dedicated to funding research for CF and improving the quality of life of those affected by cystic fibrosis. Jerry Cahill is a 49 year old male with CF who has been able to thrive with a disease that has a average lifespan of 31 years. In this podcast Jerry gives his views on living with CF.
Recent Episodes for Cystic Fibrosis Podcast
DATE: Mon, 27 Sep 2010
SIZE: 28.7 MB
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Episode #0094 Bob Esparza – Being a CF Caregiver/Parent

Title: Bob Esparza – Being a CF Caregiver/ParentBob Esparza, loving father of a  10-year-old son, Tyler, who has cystic fibrosis. Bob and his wife, Susan, live in Texas, where Tyler goes to school and stays active. Bob and Susan have been married for 17 years and have three children.-    Bob and Susan found out Tyler had cystic fibrosis at age five due to many allergic reactions that were initially diagnosed as asthma.-    “Denial … was our initial reaction and the more research we did on CF, the more frightened we became,” Bob says.-    “For the first six months, we put Tyler in a bubble, but the doctors were great and helped us outgrow that mentality,” according to Bob.-    Bob and Susan don’t let anything hold Tyler back. They let him enjoy his life and run around with his friends because "he’s a kid and needs to have fun.”-    The thing that scared Bob the most about CF is that everything is “shortened … life is shortened, but I see people like you (Jerry Cahill) at 54, and you give us hope.”-    Bob and Susan get involved in the CF community by doing CFF Great Strides every year.-    “When times get tough, my wife and I lean on each other for support, as well as our family and church,” Bob says.-    Bob’s advice to other parents with a CF child: “Treat your son or daughter like normal, and let them be a kid and enjoy.”This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is the 2nd in a series of 12 made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

DATE: Mon, 30 Aug 2010
SIZE: 30.3 MB
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Episode #0093 Bryan Pendarvis – CF and Relationships

Title: Bryan Pendarvis – CF and RelationshipsBryan Pendarvis, 21 years old with cystic fibrosis, from Louisiana, starting his senior year at Southeastern University studying microbiology. Bryan is exercising, studying hard, in an intimate relationship and LIVING BREATHING SUCCEEDING through compliance. -    Bryan was diagnosed prenatally as his older brother also had CF.-    “Staying active and trying to live a normal life and do everything that any normal person does, including dating, is my focus “, states Bryan. Bryan enjoys all sports especially: baseball, softball, jogging, and weight lifting.-    Bryan started dating around age 13. Dating made Bryan take better care of himself as he wanted to be “normal” and not show signs of weakness.-    “When dating I look for someone that is compassionate, communicates, and willing to understand. I did not ask for CF I was born with it” states Bryan.-    Telling someone that you are dating about your disease… “First I want her to get to know me for who I am and secondly for cystic fibrosis. When the time is right, I start with the basics and do not overwhelm them – I try to be subtle…” states Bryan.-    Bryan wants to be treated normal and does not want someone he is dating to fee pity for him just understand…-    Relationships that have made a major impact in Bryan’s life are his mother and older brother Shaun (passed away from CF a little over a year ago).  “My mom is always there for me and helps me overcome obstacles… and my brother Shaun taught me how to live with CF and how it should NOT hold you back…”-    Bryan on relationships: “Family is what matters and what is at heart…”This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 1st in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.    

DATE: Tue, 10 Aug 2010
SIZE: 0.35 MB
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Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference

Laurie McDonald Podcast Title: Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference Jerry Cahill interviews Laurie McDonald, Transplant Social Worker at UNC Medical Center in Chapel Hill, North Carolina. Laurie works closely with the medical team, patient, and family to make sure everything runs smoothly with the transplant. Laurie is involved in lung, heart, liver, and kidney transplant social work. Cystic Fibrosis disease progression is the reason for over 50% of lung transplants at UNC. “Financial issues as well as re-locating and waiting for the transplant are the biggest challenges for patient and family? states Laurie UNC Transplant Center offers support groups to patients and family that is both educational and good forum for stress release. Laurie recommends setting up a “fundraising team? ASAP once you are listed to help ease the financial burden of unexpected expenses. Laurie’s advice: 1. “Live everyday /minute of your life and don’t count on transplant to turn your life around? 2. “Prepare Financially? 3. “Exercise – the surgery and recovery will go smoother?  

DATE: Tue, 10 Aug 2010
SIZE: 0.46 MB
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Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference

Laurie McDonald Podcast Title: Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference Jerry Cahill interviews Laurie McDonald, Transplant Social Worker at UNC Medical Center in Chapel Hill, North Carolina. Laurie works closely with the medical team, patient, and family to make sure everything runs smoothly with the transplant. Laurie is involved in lung, heart, liver, and kidney transplant social work. Cystic Fibrosis disease progression is the reason for over 50% of lung transplants at UNC. “Financial issues as well as re-locating and waiting for the transplant are the biggest challenges for patient and family? states Laurie UNC Transplant Center offers support groups to patients and family that is both educational and good forum for stress release. Laurie recommends setting up a “fundraising team? ASAP once you are listed to help ease the financial burden of unexpected expenses. Laurie’s advice: 1. “Live everyday /minute of your life and don’t count on transplant to turn your life around? 2. “Prepare Financially? 3. “Exercise – the surgery and recovery will go smoother?  

DATE: Mon, 26 Jul 2010
SIZE: 34.7 MB
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Episode #0092 Danny Ferrone - The Power of Exercise

Title: Danny Ferrone – The Power of Exercise & CF Danny Ferrone, 26 years old with cystic fibrosis, living in Illinois and competing in triathlons. Danny is going to school to be a fitness instructor, founder of Fight Forever Foundation in 2006(www.fightforever.org), and living, breathing, succeeding with CF. -    Danny grew up playing baseball, soccer, football, BMX biking, and basketball. “My parents believed in keeping me active”, states Danny.-    “I returned to school to be a fitness instructor so I can do what I love in life and stay healthy…”-    Besides vigorous exercise, Danny believes in good nutrition as part of his programs to stay healthy. “I eat a lot of fish, pasta, fruit, veggies, and try and stay away from dairy”, states Danny.-    Danny likes variety in exercise training so also added swimming, yoga, and boxing (mixed martial arts) to his training routine. Danny has competed in 4 marathons (best time 4hours 18minutes) and 4 triathlons, including a Half Ironman.-    The biggest Danny faces related to exercising and CF is “dehydration” but his secret is a lot of water, electrolytes, and drinking salt water.-    “Exercising with CF can be uncomfortable but throw yourself into it and be HONEST with yourself… you will feel better”, states Danny.-    Danny’s recommendation to others with CF; “Challenge yourself, keep pushing, and remember you are not alone – fight hard…”This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 12th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

DATE: Mon, 14 Jun 2010
SIZE: 16.8 MB
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Episode #0091 CFRI Teen & Adult Retreat: August 3rd – 9th 2010

Title: CFRI Teen & Adult Retreat: August 3rd – 9th 2010Maggie Sheehan, 22 years old with cystic fibrosis, talks about her great experiences attending the CFRI Retreat in Northern California. The retreat takes place off the beaten path under the “redwoods” on 10 minutes from Stanford Hospital.  CFRI is a great organization that empowers the CF Community to attain the highest possible quality of life.-    The CFRI Retreat has been in existence since the 1990’s. Maggie has been attending for the retreat for 5 years and scholarships are available-    “Activities at retreat include; rap sessions, arts & crafts, sporting events, fun in the sun, and great food!” states Maggie.-    To attend the retreat you must be over 15 years old with guardian and over 18 years old by yourself. Friends and significant others are welcome to attend and join in the fun.-    The retreat is a very safe environment that follows strict guidelines regarding cross infection. Maggie feels that the retreat is “ safer than the real world”.-    “My favorite part of the retreat is the sharing and the talent show at the end of the week” states Maggie.-    Maggie continues to return to the retreat because of the great friends she makes and the awesome connection to the CF community.-    Maggie feels refreshed at the end of the retreat.-    For more info on the retreat call: 650-404-9975-    Email: cfri@CFRI.org-    Website: www.CFRI.org

DATE: Tue, 08 Jun 2010
SIZE: 25.3 MB
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Episode #0090 Fundraising For A Cure

Title: Episode #0090 Fundraising For A Cure Gwen Shusterman discusses various ideas on FUNDRAISING for a cause.This year Team Boomer – Fighting Cystic Fibrosis will have over 100 runners competing in the ING New York City Marathon - ALL will be running and fundraising for a cause…Team Boomer – Fighting Cystic Fibrosis was set up through the Boomer Esiason Foundation to help raise funds for the fight against cystic fibrosis and raise awareness to the importance of exercise for people with CF.Team Boomer’s goal is to improve the “quality of life” and “lifespan” of individuals with CF through the power of “daily exercise”. As therapeutic developments increase the lifespan of CF patients so does the need for further education in the area of exercise.-    Gwen believes there is no secret to fundraising; “It’s an art and partly as science… fundraising is personal so you have to do it in your own style”.-    “Come up with a game plan: First think of a target number and then think of EVERYONE you know who you can possibly approach,” states Gwen.-    Think outside the box… “People are going to surprise you. All those people I said to put on the list – the acquaintances, your kid’s friend’s parents, an old boyfriend/girlfriend, the person you met at a conference last month – they all add up” states Gwen.-    Once you have your list together the next step is setting up a First Giving page: www.firstgiving.com/TeamBoomer. -    “Next take your list and send out an email blast with your fundraising page info to ALL your contacts” states Gwen.-    Other ideas for fundraising include special events such as happy hour at a local bar, golf events, school events, and many companies have “matching gift” programs.-    Why Can’t I tell people what my minimum is? “Really, if you entered this kind of event (marathon) then I doubt you’re the kind of person who just settles on the minimum” states Gwen-    A lot of work? “If you mean does fundraising take time – yes it does! To be successful you have to personalize your story and it’s really important to start early!” states Gwen.-    Final thoughts… “I think anyone who is willing to do something like join TEAM BOOMER is amazing. It takes a special person to make this kind of commitment. Use your passion. Good luck!

DATE: Tue, 01 Jun 2010
SIZE: 59.1 MB
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Episode #0089 Jerry Cahill - It's Not About CF

Title: Jerry Cahill – It’s Not About CFJerry Cahill, 53 years old with cystic fibrosis, living in Brooklyn, NY. Jerry is exercising with oxygen to keep his lungs clear, coaching, and volunteering at the Boomer Esiason Foundation as he awaits a double lung transplant. Jerry attacks the day and is living, breathing, and succeeding with CF. -    Jerry was diagnosed at age 10 and the doctors told his parents he would not make it to his 16th birthday.-    “Growing up with CF is challenging but you just have to push through…  it’s a discipline,” states Jerry.-    Jerry loves being outdoors all year and exercises with a small oxygen tank, which helps Jerry breathe better while he awaits a double lung transplant.-    “I believe in a complete program of being compliant to medications, good nutrition, exercise, and a fun social life,” states Jerry.-    “Going out on disability is tough but you just have to RE-INVENT yourself,” states Jerry-    Jerry believes in “attacking the day and focus on living! I look forward to tomorrow and the next day, next week, and next year…”This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 11th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

DATE: Tue, 13 Apr 2010
SIZE: 29.4 MB
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Episode #0088 Walks on the Beach With Angie: A Father’s Story of Love by Don Warner

Title: Episode #0088 Walks on the Beach With Angie: A Father’s Story of Love by Don WarnerWalks on the Beach with Angie: A Father’s Story of Love describes Don’s relationship with his beloved daughter, Angela, who had cystic fibrosis. Don Warner and his wife, Linda, did everything they could to give their only child immeasurable love and the fullest life possible, all the while carrying out an aggressive treatment regimen to fight her fatal disease.-    Angela was diagnosed at 3 months of age and recalls how alarming & frightening the information on CF was at the library. -    “Angie was an active child and a normal high school kid very involved in cheerleading,” states Don.-    During the final 86 days of her life, as Angie lay in the intensive care unit on a ventilator, the Warner’s were surrounded by love ones. The grief and loss that Don and his wife experience prompted him to write the book and create a lasting legacy in her honor.-    Angela loved vacationing with the family in Laguna Beach, taking walks on the beach at night star gazing, and having great conversations about life.-    Don Warner’s advice to CF patients and their families; “keep fighting everyday”.-    Don Warner’s recommendations to others that experience the loss of a child from a fatal disease; “whatever pain you are feeling it’s ok, surround yourself with loved ones, and have faith & hope that you will re-unite someday”.-    For more information go to: www.angelawarnerfoundation.org This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 10th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

DATE: Tue, 16 Feb 2010
SIZE: 42.3 MB
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Episode #0087 Dan Palumbo – Gearing Up for Disability with CF

Title: Episode #0087 Dan Palumbo – Gearing Up for Disability with CF Dan Palumbo, 53 years old with cystic fibrosis, grew up in Wilkes-Barre, Pennsylvania, married and the proud father of twins that are both in law school. Dan has his own advertising agency but due to the progression of CF is considering disability so he can spend more time taking care of his health. Dan, at age 53, is living, breathing, succeeding with CF.-    Dan was diagnosed at 1month of age in Wilkes-Barre, PA. -    Graduated college with a degree in communications and advertising, Dan worked at a local TV station before opening up his own advertising agency in 1980.-    “I stay very compliant and manage my health because I have goals and dreams and I want to achieve things”, states Dan.-    Dan is considering disability because, at age 53, it is getting tougher to get through the day with all the treatments and a full-time job.-    “Disability maybe my only choice if I want to stay alive and watch my son and daughter start a family – I want to be a grandfather”, states Dan Palumbo.-    Dan’s biggest fear about disability is the loss of a lot of his business relationships/friends but feels his health is more important at this point in time.-    “I am a published song writer and I will exercise more and do more treatments once I go out on disability… it’s all about MORE treatments to stay healthy with CF”, states Dan.This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 9th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

DATE: Tue, 08 Dec 2009
SIZE: 32.5 MB
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Episode #0086 Travis Flores – Giving Back to the CF Community

Title: Travis Flores – Giving Back to the CF CommunityTravis Flores, 18 years old with cystic fibrosis, grew up in Ohio and is currently attending college in New York City. Besides going to school Travis wrote a children’s book, has 2 websites that are raising awareness and funds for cystic fibrosis, a Heroes of Hope recipient, and Travis is living, breathing, succeeding with CF. -    Travis started advocating for cystic fibrosis at a very young age and “embraces cystic fibrosis”-    The Spider Who Never Gave Up is a children’s book that Travis wrote when he was 8 years old. (www.sparkeythespider.com) -    Travis also created a non-profit organization that helps get computers for children and adolescent patients in the hospital so they can communicate friends (www.tfcf.org) -    Travis enjoys being active in the community, writing music, people watching, and taking long walks.-    “Living with CF it is important to find a balance with being compliant and your social life as well as having a great support team,” states Travis.-    Travis’ goals include; graduate college, succeed in career, and raise awareness for cystic fibrosis.-    Travis’ recommendation to everyone – “Embrace life!” This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 8th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

DATE: Thu, 29 Oct 2009
SIZE: 30.2 MB
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Episode #0085 Casey Flaherty – Nutrition and CF

Episode #0085 Casey Flaherty – Nutrition and CFCasey Flaherty, 25 years old with cystic fibrosis, living in New York City and running the ING New York City Marathon. Casey is working, attending nursing school, taking yoga classes and living, breathing, and succeeding with CF. -    Casey eats a high calorie well rounded diet consisting of fruits, nuts, vegetables, dairy for calcium, and lots of carbohydrates & protein,-    “Besides being adherent to my treatments I believe in good nutrition, exercise, and rest. I try to get 8 hours of sleep every night” states Casey.-    Casey loves junk foods like baked goods and pizza but tries to stay away from foods high in corn syrup and processed goodies.-    “I am always eating throughout the day so I make sure I pack my bag with fruit and trail mix” states Casey.-    Casey’s little secret on nutrition and CF is that she eats a lot of peanut butter and cheese as a snack because if it’s nutritional value.-    “CF is part of my life and I just deal with it… everyone has something” states Casey.-    Casey’s recommendations to others with CF, “Be adherent to your medications, have a well balanced diet, rest, and communicate with your doctor”.-    Casey believes, “The more you put into your health, the more you will get out of it!” This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 7th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

DATE: Wed, 14 Oct 2009
SIZE: 60.3 MB
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Episode #0084: Remembering Brian - A Wonderful Husband and Loving Father - Windows Version

Episode #0084: Remembering Brian - A Wonderful Husband and Loving FatherThe Gerofsky family (Debbie, Evin, and Alex), the wife and sons of the late Brian Gerofsky share their heartfelt feelings about Brian. Debbie and her sons talk about living with CF in the family unit and share their fond memories of Brian.-    Debbie was married to Brian for 26 years and has 2 wonderful sons Evin (22 years old) and Alex (19 years old)-    “Brian was funny, loving, smart, passionate, and to know him was to love him”, states Debbie. Brian always called Debbie his soul mate and his song for her was Van Morrison’s Brown Eyed Girl.”-    Brian was very private, independent and compliant with his CF care, as he did not want to burden his family. “We lived our life around Brian’s CF and did not let it stop us from LIVING!” states Debbie.-    The Gerofsky family did a lot together and enjoyed the beach, museums, music, dance, and Broadway shows. The family meant everything to Brian and he believed in hard work and LIVE YOUR LIFE!-    Debbie, Evin, and Alex believe that the most important thing in a family dealing with CF is; “open communication and to respect each others feelings…”-    Evin and Alex admired their dad’s strength and the fact that he was always there for them. -    “If my dad was here right now I would like to tell him THANK YOU and I love you very much” states Evin and Alex.-    Brian passed away from cystic fibrosis in May 2009 at age 57.-    Although Brian is gone his memories live on…This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 6th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

DATE: Tue, 13 Oct 2009
SIZE: 58.5 MB
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Episode #0084: Remembering Brian - A Wonderful Husband and Loving Father

Episode #0084: Remembering Brian - A Wonderful Husband and Loving FatherThe Gerofsky family (Debbie, Evin, and Alex), the wife and sons of the late Brian Gerofsky share their heartfelt feelings about Brian. Debbie and her sons talk about living with CF in the family unit and share their fond memories of Brian.-    Debbie was married to Brian for 26 years and has 2 wonderful sons Evin (22 years old) and Alex (19 years old)-    “Brian was funny, loving, smart, passionate, and to know him was to love him”, states Debbie. Brian always called Debbie his soul mate and his song for her was Van Morrison’s Brown Eyed Girl.”-    Brian was very private, independent and compliant with his CF care, as he did not want to burden his family. “We lived our life around Brian’s CF and did not let it stop us from LIVING!” states Debbie.-    The Gerofsky family did a lot together and enjoyed the beach, museums, music, dance, and Broadway shows. The family meant everything to Brian and he believed in hard work and LIVE YOUR LIFE!-    Debbie, Evin, and Alex believe that the most important thing in a family dealing with CF is; “open communication and to respect each others feelings…”-    Evin and Alex admired their dad’s strength and the fact that he was always there for them. -    “If my dad was here right now I would like to tell him THANK YOU and I love you very much” states Evin and Alex.-    Brian passed away from cystic fibrosis in May 2009 at age 57.-    Although Brian is gone his memories live on…This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 6th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

DATE: Wed, 23 Sep 2009
SIZE: 18.4 MB
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Episode #0083 Kevin McCrea – Exercise for Clear Lungs

Title: Episode #0083 Kevin McCrea – Exercise for Clear LungsKevin McCrea, 18 years old with cystic fibrosis, living Washington and loving life. Kevin is involved in many sports, and enjoys spending time with family and friends.  Attending Washington State University, Kevin believes in “shaking up the lungs and clearing them out” through vigorous sports.-    Kevin was diagnosed at age two and grew up in a small town in the Northwest. Living in the country Kevin enjoys swimming, hiking, fishing, and riding dirt bikes.-    “In high school I was actively involved in team sports including track & field (4 years), basketball (2 years), and football (1 year). Sports was a social event and has made a major impact on my health” states Kevin.-    Kevin’s training in basketball and track & field was 2 hours 6 days/week and the running and jumping makes him cough and clear out his lungs.-    Kevin on being compliant: “I believe in staying compliant and doing all my treatments, including exercise, so I can stay healthy and live a long life”.-    The biggest challenge that Kevin faces with CF is time management of all the treatments.-    “CF is not a big deal to me… I was born with it, live with it, and it will not stop me”, believes Kevin.-    Kevin’s advice to other teens with CF; “Push forward an never give up – be active and go for it!”-    “Step it up! Get out there and live and do not alienate yourself”, Patrick’s advice to others with CF thinking about college.This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast series is the 5th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

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